(Photo Description: A black and white photo of a wooden model ship.) Sunday April 24th The day started off with two chores that I somehow managed to finish by 11am. After which I watched YouTube and TikTok. That kept me busy until lunch. In the afternoon I started making changes to this website. Some ofContinue reading “24-30 April – The Greatest Showboat”
Tag Archives: Disability
17 – 23 April ‘22 – Let’s Get Moving
(Photo Description: A row of trees covered in white blossom stand alongside a dirt path in the forest.) Sunday April 17th First Easter day. Not that we’re celebrating. It’s not something personal to us. Besides, we already have more than enough chocolate in the house that I barely eat and… it’s 17c with blaring sunContinue reading “17 – 23 April ‘22 – Let’s Get Moving”
10 – 16 April ‘22 – Stupid O’Clock
(Photo Description: Codee sitting in a lazy chair, hugging Bailey. A small bown and white fluffy dog.) Sunday April 10th The nurse’s planning was a bit crammed I think. They wanted to make sure I got my meds – particularly the ones for my stomach and my sugar – on time, so I could eat.Continue reading “10 – 16 April ‘22 – Stupid O’Clock”
3 – 9 April ‘22 – Ups, Downs & Roundabouts
(Photo Description: Codee sitting at her desk where the computer is switched on. Smiling at the camera with thumbs up.) Sunday April 3rd. I was helped by one of the youngest nurses on the team this morning. There was a time when I really wasn’t able to click with people my age or younger. ButContinue reading “3 – 9 April ‘22 – Ups, Downs & Roundabouts”
March 27th to April 2nd ‘22 – Reunited With Normal
Photo by Jessica Hobo @ Wandel In NL (Photo Description: A blue, white and yellow NS train crossing a red bridge on a cloudy day.) Sunday March 27th I really don’t have a huge ammount to tell you about today. We were both tired. So ended up under blankets in front of the TV mostContinue reading “March 27th to April 2nd ‘22 – Reunited With Normal”
20-26 March ‘22 – The Lion, The Eye Gel and the Boxes in the Wardrobe
(Photo Description: A picture of a lion standing on some rocks under a blue sky. With a tree behind him. Made out of colored Ministeck stones.) Sunday March 20th I woke up with that all too familiar pricking feeling in my left eye, which the eye gel is supposed to be helping. It’s not theContinue reading “20-26 March ‘22 – The Lion, The Eye Gel and the Boxes in the Wardrobe”
15-19 March ‘22 – Hospitalitis
Photo by Jessica Hobo @ WandelInNL Photo Description: Doctor’s hands hold a small device against Codee’s eye to measure eye pressure.) Tuesday March 15th I started doing chores after I was done with my breakfast and tea, when Jessica came to ask me if I wanted to go with her to the village. They’ve openedContinue reading “15-19 March ‘22 – Hospitalitis”
8-14 March ‘22 – Staycation
(Photo Description: Codee sitting in a recleining chair with Bailey, a small brown and white fluffy dog, on her lap.) Tuesday March 8th Jessica, who is lovingly known as Twofooter on Twitter, has started her second day of a two week vacation. Or was that a staycation? There’s no going to the office for her,Continue reading “8-14 March ‘22 – Staycation”
Reflection
(Photo Description: Codee sees her reflection smiling back at her as she stands to look in the mirror.) When I created this website, I was only aiming to make an information portal about CRS. Later, when I added my blog, I thought writing about CRS related topics would be an added bonus. Recently though, IContinue reading “Reflection”
The Perfect… Patient?
(Photo Description: The nurse’s hands pop a tablet out of a blister pack into Codee’s hand.) When the nurses started coming to help me, I spent a short while not knowing how to refer to myself. Not as a person, but in relation to the nurses. Am I their patient? Though I have chronic illnesses,Continue reading “The Perfect… Patient?”
CRS Life 