My name is Angela. I am 55 years old and a CRS warrior.
I live in the Netherlands with my awesome husband and we have two lovely daughters who are adult now living on their own.
My mother and father passed away a couple of years ago.
My mother contracted Rubella during her pregnancy with me at about six weeks. At that time, 1965, there was no vaccine for Rubella.
I was born very small and a few weeks premature.
My mother told me I was very slow with feeding. She went from one feeding directly to another without time in between.
I had two heart defects, pulmonal stenoses and ductus botalli wich I had surgery for when I was 15 years old.
I also have hearing problems and vision problems.
I wear hearing aids nowadays, since the age of 38.
My vision poblems are solved by glasses.
And dental problems, I have partial dental brace.
Had a couple of babyteeth when I was 42 and they crumbled leaving nothing behind. Very cute…😝
CRS also has late onset symptoms.
I also have some minor issues like a few epileptic seizures , diabetes, a CVA and high blood pressure.
All a little bit but with all the symptoms combined a tricky combination that puzzles many doctors.
I consider myself lucky for having loving parents and a loving family nowadays.
Things were not always easy but isn’t everybody coping with issues in life?
I am a warrior who likes to think that talking about things works. Listening to music works for me.
I am a Bruce Springsteen fan who listens to his lyrics and learns from it. Great music too.
Right now I am getting therapy for my issues with the CVA. I am very grateful for this and I hope this will help with issues like memory, household plans and lots of other things.
I met Codee, my bonus sister, on facebook.
We connected with each other just fine. She is great and we met later on in real life.
Together we became very close and help each other with braille and sign language. Fun and also very hard te learn. 😝
In our Facebook group, where I am an administrator we like to be your partners in listening to your stories, trying to help, supporting one another and lifting each other up. CRS is a syndrome that is quite diverse and doctors often don’t have all the answers. We like to support you. We don’t always have the answer but we are willing to listen and maybe we have tips or maybe other warriors can relate to your stories.
We want to be a positive, caring group who want to support. Wether you want to lay your worries down or you want to have something off your chest or want to have some diversion from your problems.
You are more than welcome to join our group. 🤗
CRS Life 